One of the loneliest parts of a glioblastoma diagnosis is how isolating it can feel. I am Julie Crawshay, and when Nic was diagnosed, I quickly realised that very few people my age had been where we were. Finding community changed everything.

The isolation nobody warns you about

Friends want to help but often do not know how. Conversations can become awkward. You can be surrounded by love and still feel profoundly alone in the specific reality of caring for someone with GBM. That isolation is real, and naming it is the first step to easing it.

Building connection through The Neuro Farmacist

When I started @the_neuro_farmacist, I did not expect it to become a community. But caregivers began reaching out — partners, parents, siblings — all carrying the same unspoken loneliness. We found each other. That connection became as valuable as any piece of information I shared.

You are not alone

If you are a GBM caregiver, please know there are people who understand exactly what you are carrying. Reach out — to foundations like the Cure Brain Cancer Foundation, to online communities, or to me. You can also read about what caregiving taught me about strength.

No one should have to face brain cancer alone. Building community is part of how we make sure they don't.